Sickle Cell Awareness Month: Understanding, Managing, and Supporting
9/1/2023
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Posted by Jermel J. Hawkins, Jr., MD, MPH, Fidelis Care Sr. Medical Director
September marks Sickle Cell Awareness Month, an opportunity to educate and advocate for those affected by sickle cell disease (SCD). This month provides us with a platform to raise awareness, dispel misconceptions, and highlight the importance of early detection and comprehensive care.
What is Sickle Cell Disease?
Sickle cell disease is an inherited blood disorder that affects the shape and function of red blood cells. Normally, red blood cells are round and flexible, allowing them to easily flow through blood vessels. However, in individuals with SCD, these cells take on a crescent or "sickle" shape, making them prone to getting stuck in blood vessels. This can lead to blocked blood flow, causing intense pain and potential organ damage.
Centers for Disease Control data show that SCD occurs in about one out of every 365 Black or African American births. One out of every 16,300 Hispanic births, especially those among Caribbean, Central American, and South American ancestry; is impacted by SCD. The condition is less prevalent among Asians and Caucasians.
Signs and Symptoms
Recognizing the signs and symptoms of SCD is crucial for early intervention and improved quality of life. Common symptoms include severe pain episodes (known as sickle cell crises), fatigue, jaundice (yellowing of the skin and eyes), shortness of breath, and increased susceptibility to infections. It is important to note that symptoms can vary widely from person to person, and some individuals may experience milder forms of the disease.
Treatment and Management Options
While there is currently no cure for SCD, advances in medical research have led to more effective treatment and management strategies. Early diagnosis and regular medical care are key components of managing the condition. Treatment may include pain management during crises, blood transfusions to improve oxygen delivery, and medications to reduce complications. Staying hydrated, maintaining a healthy lifestyle, and avoiding triggers like extreme temperatures and stress can help reduce the frequency and severity of sickle cell crises. Individuals with SCD may benefit from ongoing counseling and support to manage the emotional and psychological aspects of living with a chronic condition.
A Call to Action
During Sickle Cell Awareness Month, let’s come together to support affected individuals and encourage early intervention. If you or a loved one experience any symptoms of sickle cell disease, seek medical attention promptly. Early diagnosis and proper management can significantly improve outcomes and enhance the quality of life for those living with SCD.
At Fidelis Care, we are committed to providing comprehensive coverage and support for individuals with sickle cell disease. Our network of healthcare providers is equipped to offer personalized care and guidance to help effectively manage this condition.
Knowledge is power. Help us spread the word and ensure that no one faces sickle cell disease alone.
Sickle Cell Disease Resources
Fidelis Care offers case management support to members with sickle cell conditions. A Case Manager is a registered nurse or medical social worker who works closely with the member, family, physician, and members of the care team to help individuals reach their health goals.
If you are interested in having a Case Manager help you meet your health goals, call 800-247-1441 ext. 16875.